Cystinosis Research Foundation Funds Researchers in US, Europe ... - Business Wire (press release)
IRVINE, Calif.--( BUSINESS WIRE )--The Cystinosis Research Foundation of Irvine, Calif., announced it has awarded $425,528 in grants to researchers in the United States and Belgium who are working on new treatments and a cure for cystinosis, a rare, deadly metabolic disorder that afflicts about 500 children and young adults in the United States and 2,000 worldwide.
“With more than $7,436,638 in grants for cystinosis research issued by the CRF to date, our foundation is the leading funding source for bench and clinical investigations worldwide. Every day, CRF researchers around the world get closer to developing new treatments and a cure for cystinosis, which we believe will come in the next five years,” said Nancy Stack, CRF president.
Dr. Elena Levtchenko at the University Hospital Leuven in Belgium was awarded $150,000 for a two-year study called “Unraveling the Mechanisms of Cysteamine Toxicity in Patients with Cystinosis.” At Stanford University School of Medicine, Dr. Minnie Sarwal and Renee Reijo Para, Ph.D., received $164,483 for a one-year study on the “Characterization of Novel Lysosomal Genes for Immune Regulation and Spermatogenesis in Nephropathic Cystinosis.” The CRF also awarded $111,045 to Betty Cabrera, MPH, at the University of California at San Diego to fund her work as a bench and clinical research assistant for three years.